So far the year 2020 has been a year of craziness due to COVID-19 going on and that has even affected how the SuperWalk will take place!! It will all be done virtually... No bagpipes playing, no balloons nor hoopla, no warm-up exercises... just a flat screen. I have tried to bring life into my message with a little color from Rainbow Brite's wand!!
Therefore, please accept this message as your personal invitation to really make a difference by making whatever size donation you feel you can!!
A HUGE THANK YOU FOR YOUR SUPPORT LAST YEAR (financially and/or through thoughts, words and prayers)! I now consider myself to be a "walking example" of how a donation can change a person's life!! Please take the time to read "the rest of the story" that is part way down this page...
Although I should have had my page up and running before now it is never too late to start. I am setting my goal at $5,001 this year and hope to beat it in the next 30 days!!! If you need more time, donations will be accepted until December 31st, they just won't be added to my count. Please feel free to join my Team that is called PERCS for Parks - Positive Energy Requires Creative Spirits... and raise funds at your workplace and on your social media locations to show your support for all of us who share Parkinson’s disease!!
Now for the "rest of the story"...
So you want to know why I continue to raise funds to help beat Parkinson disease... read on...
This is an introduction to the “NEW and BETTER, Wendy” as a result of the events that have happened since last year’s Parkinson SuperWalk and it will explain my actions!!
By being in what is called the “advanced stages” of this cruel disease called Parkinson’s, I was chosen to be 1 of the 5 candidates for 2019 to go through with the BC gov’t funded Duodopa program. Oddly enough, this program is covered by Medical in most of the other provinces. Simply stated, that through my waking hours I wear a fanny pack that holds a pump, a cassette with the gel medicine and some tubing that is connected to the cassette and goes through an incision beside my belly button and into my small intestine. If I wake up between the hours of 12 – 2am then I get up and take an Apo-Levocarb controlled release oral pill to get me through until morning – which for me is around 5 – 5:30am. When everything is working and the balance of too much or too little has been reached, I am a happy camper because at that point I am able to walk without the aid of a wheelchair, walker or cane.
I am not TOTALLY BETTER health-wise but am so-o-o much better than when I was on oral medications. Sometimes I have to remind myself of that because I have already experienced a blockage that required another operation and a kink in the line (on July 1st - a holiday for most - no less...) that needed medical assistance! You do learn patience!
PSBC is advocating for changes to be made to make this program more accessible to more people who fall into the class of candidate material!!! It is a costly procedure, around $60,000/year just for the medicine. PSBC is also working on getting better access to this program, right here in Kelowna, instead of having to go to Penticton if there is a problem. Something I have experienced, as the only doctor trained in this actual procedure works out of Penticton. When the pump doesn’t work, you must go back on oral meds until it can be sorted out.
Similarly, the only doctor for the province (soon to be changing, I hear) who performs Deep Brain Stimulation (DBS) is Dr. Honey in Vancouver. Recently, the wait to first talk to him was 2-3 years and the actual surgery for that would be a couple more years after that... lots of people are past when their symptoms can be corrected by that time. Steps are in motion for speeding up the process...
In light of all that information I want to once again, thank each of you so very much for your generous donations that helped me to be one of the top fundraisers last year!!
News from this summer (2020) states that a cooperative approach has been reached between the Interior Health Authority, Parkinson Society BC and the Okanagan Movement Disorder Program for the hiring of a part-time physiotherapist, a part-time speech-language pathologist and a part-time social worker for a period of 5 years to work from our Okanagan Movement Disorder Program (www.okmove.ca) here in Kelowna. Thanks PSBC for advocating on our behalf.
So you ask... Where does the SuperWalk money go??? Does Kelowna ever see any of it?? The PROOF EXISTS that some of the Society’s funding for this cooperative approach came as a result of your PAST, PRESENT and FUTURE donations to SUPERWALK. No matter how big or small your donation is... it ALL helps... Just look at me now!! I AM A WALKING EXAMPLE of how a donation can change a person’s life!!!
The reason I walk is to bring attention to this disease and to show the world just how much difference a small donation can make! I know that times are tough with the COVID-19 and all, but if you are able, I would be most grateful if you can help me reach my goal of $5001...
It was 10 years ago (2010) when Phil and I moved back to Kelowna and with much help from PSBC along with family members and friends we organized and held Kelowna’s first Parkinson SuperWalk. At that time, there were an estimated total of about 11,000 people who had this disease in BC and now the estimate of people with the disease reaches 13,300!! In total since 2010 I am thrilled and so proud to say Kelowna has raised over $596,582.00 from the donations raised at SuperWalk!!!! We are also grateful to all those who have and are working so hard to carry it on, locally and provincially.
Thanks again for all your thoughts, prayers and donations!!!
Please choose to support me at SuperWalk 2020 by responding to this message. By doing so, all of us who share the disease will benefit. Thank you in advance for your kind and generous continued support.